Q3Indigent FamiliesNumber (2.4%)What proportion of families of children with cancer in your facility are indigent?FR_Indigent
Percentage (0-100). N=118 responses. Mean=2.4%, Median=0%, Range=0-100%.
Q4Financial Assistance AccessNumber (51.5%)For patients unable to pay for treatment-associated costs, what percentage have access to financial protection/assistance?FR_FinancialAssistance
Percentage (0-100). N=118 responses. Mean=51.5%, Median=67.5%, Range=0-100%.
Q5Payment Sources: HospitalizationGovernment (84%)Who pays for treatment-associated costs? a. Hospitalization (check all that apply)Hosp___*
Check all sources that apply. Max 3 pts per category. {N} facilities responded.
Q6Payment Sources: Ambulatory VisitsGovernment (69%)Who pays for treatment-associated costs? b. Ambulatory visits (check all that apply)Outpatient___*
Check all sources that apply. Max 3 pts per category. {N} facilities responded.
Q7Payment Sources: Diagnostic ImagingGovernment (77%)Who pays for treatment-associated costs? c. Diagnostic imaging (check all that apply)DxImaging___*
Check all sources that apply. Max 3 pts per category. {N} facilities responded.
Q8Payment Sources: Basic LabsGovernment (82%)Who pays for treatment-associated costs? d. Basic diagnostic laboratories (CBC, chemistries, LFTs, etc.) (check all that apply)Labs___*
Check all sources that apply. Max 3 pts per category. {N} facilities responded.
Q9Payment Sources: Specialty LabsGovernment (70%)Who pays for treatment-associated costs? e. Specialty diagnostic laboratories (tumor markers, drug levels, etc.) (check all that apply)SpecLabs___*
Check all sources that apply. Max 3 pts per category. {N} facilities responded.
Q10Payment Sources: Basic PathologyGovernment (75%)Who pays for treatment-associated costs? f. Basic pathology (morphology, H&E, etc.) (check all that apply)Path___*
Check all sources that apply. Max 3 pts per category. {N} facilities responded.
Q11Payment Sources: Specialty PathologyGovernment (59%)Who pays for treatment-associated costs? g. Specialty pathology (IHC, Flow, FISH, cytogenetics) (check all that apply)SpecPath___*
Check all sources that apply. Max 3 pts per category. {N} facilities responded.
Q12Payment Sources: ChemotherapyGovernment (83%)Who pays for treatment-associated costs? h. Chemotherapy (check all that apply)Chemo___*
Check all sources that apply. Max 3 pts per category. {N} facilities responded.
Q13Payment Sources: Other MedicationsGovernment (79%)Who pays for treatment-associated costs? i. Other medications (antibiotics, etc.) (check all that apply)Meds___*
Check all sources that apply. Max 3 pts per category. {N} facilities responded.
Q14Payment Sources: Supportive CareGovernment (82%)Who pays for treatment-associated costs? j. Supportive care (blood products, etc.) (check all that apply)SupportCare___*
Check all sources that apply. Max 3 pts per category. {N} facilities responded.
Q15Payment Sources: SurgeryGovernment (82%)Who pays for treatment-associated costs? k. Surgery (check all that apply)Surgery___*
Check all sources that apply. Max 3 pts per category. {N} facilities responded.
Q16Payment Sources: RadiationGovernment (74%)Who pays for treatment-associated costs? l. Radiation (check all that apply)Radiation___*
Check all sources that apply. Max 3 pts per category. {N} facilities responded.
Q17Payment Sources: RehabilitationGovernment (75%)Who pays for treatment-associated costs? m. Rehabilitation services (check all that apply)Rehab___*
Check all sources that apply. Max 3 pts per category. {N} facilities responded.
Q18Payment Sources: Internal ProsthesisGovernment (42%)Who pays for treatment-associated costs? n. Prosthesis (internal) (check all that apply)IntProsthesis___*
Check all sources that apply. Max 3 pts per category. {N} facilities responded.
Q19Payment Sources: External ProsthesisFoundation (39%)Who pays for treatment-associated costs? o. Prosthesis (external) (check all that apply)ExtProsthesis___*
Check all sources that apply. Max 3 pts per category. {N} facilities responded.
Q20Payment Sources: Ocular ImplantsGovernment (36%)Who pays for treatment-associated costs? p. Ocular implants (check all that apply)Ocular___*
Check all sources that apply. Max 3 pts per category. {N} facilities responded.
Q21Payment Sources: Medical SuppliesFamily (52%)Who pays for treatment-associated costs? q. Medical supplies (crutches, wheelchairs, etc.) (check all that apply)MedSupplies___*
Check all sources that apply. Max 3 pts per category. {N} facilities responded.
Q22Payment Sources: Medical DevicesGovernment (76%)Who pays for treatment-associated costs? r. Medical devices (central lines, subcutaneous ports, Hickman, etc.) (check all that apply)MedDevices___*
Check all sources that apply. Max 3 pts per category. {N} facilities responded.
Q23Payment Sources: HousingFamily (72%)Who pays for treatment-associated costs? s. Housing (check all that apply)Housing___*
Check all sources that apply. Max 3 pts per category. {N} facilities responded.
Q24Payment Sources: MealsFamily (71%)Who pays for treatment-associated costs? t. Meals (check all that apply)Meals___*
Check all sources that apply. Max 3 pts per category. {N} facilities responded.
Q25Payment Sources: TransportationFamily (74%)Who pays for treatment-associated costs? u. Transportation (check all that apply)Transport___*
Check all sources that apply. Max 3 pts per category. {N} facilities responded.
Q26Parent Sleeping SpacesYes (79%)Are there beds, cots, or sleeping spaces designated for parent(s) within your facility?FR_Beds
Q27Sleeping Space TypeBed/cot (47%)If yes, please describe the sleeping arrangements:FR_Beds_Yes
1[1 pt]In chair next to child
2[1 pt]In bed or cot next to child
3[2 pts]In separate/private area
4[1 pt]Other
Sub-question of Q26. Only answered when FR_Beds = Yes.
244 (47%) — Bed/cot [1 pt] 37 (8%) — Private area [2 pts] Q28Local HousingYes (75%)Is local housing available within 1 hour away for patients and families who do not live near the facility?FR_Housing
1[5 pts]Yes
2[0 pts]No
3[0 pts]Do not know
33 (3%) — Don't know [0 pts] Q29Transportation ServicesNo (71%)Does your facility provide transportation services for PHO patients and their families to and from your facility?FR_Transport
Q30Meal SupportPatients only (42%)Does your facility provide meal support for PHO patients and their families while inpatient?FR_Meals
1[5 pts]Yes, patients and caregiver(s)
2[3 pts]Yes, patients only
3[0 pts]No
142 (36%) — Patients & caregivers [5 pts] 250 (42%) — Patients only [3 pts] Q31Health Education ProgramsNo (58%)Are there any formal programs for PHO health education for patients and families at your facility?FR_HealthEdu
1[5 pts]Yes
2[0 pts]No
3[0 pts]Do not know
34 (3%) — Don't know [0 pts] Q32Cancer Advocacy GroupsYes (53%)Are there any local parent/advocacy groups for children with cancer?FR_CancerAdvocacy
1[5 pts]Yes
2[0 pts]No
3[0 pts]Do not know
37 (6%) — Don't know [0 pts]